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Wednesday, April 27, 2011

Question for our Readers: Please Help!

:-) Hi everyone. If you could take a second to read this email and offer some suggestions?

Good Morning,

I need a little bit of help and was hoping that ABD could help. 
A child I know has seizures. His seizures had been under
control for the first 1/2 of the school year, he only had 2 from
September to December but his medications were changed and his
seizures have increased to several seizures per week. His parents have
decided to put him on a Ketogenic diet and take him off his mediations
to see if that will help decrease or regulate his seizure activity. I
have done research on-line, but I haven't found anything helpful other
than little info on the actual diet itself. I was wondering if anyone
on the ABD has had experience with their child on the Ketogenic diet
an their opinions of it. Also, if anyone has any food recipes for the
diet because this child is particularly picky when eating and I am
concerned that lack of food intake will increase the amount of
seizures as well.

If you can help in any way I'd appreciate it greatly. Thank you.

6 comments: said...

I don't have experience with the Ketogenic diet personally but would be happy to pass on your contact info to a friend whose son was/is on the ketogenic diet for seizures.

KWombles said...

Thanks, Heather.

Neurodivergent K said...

I was on Modified Atkins for seizures for a while. I ate avacado & bacon for breakfast.

There are a number of epilepsy groups on Facebook with keto-knowledgable people posting.

Cortney said...

Thanks Heather and Neurodivergent. I'll look into facebook.

DeeAnn said...

I have a 29 year old son who has had seizures off & on since the age of 7. When I read this post, my first thought was CONCERN about his parents taking him off of medication. Seizures can be so very hard on a body. With or without a special diet, I certainly hope they will get professional advice about the medications available. If they aren't comfortable with their neurologist, they should search around until they find a doctor they can work with. I am also BIG on university hospitals and specialists. University hospitals ARE teaching hospitals, so they have the best of the best.

Cortney said...

Thanks DeeAnn, I also have concern over the decision, but it has already happened.. Unfortunately I know that he was taken off the med's and has not started the diet yet like I thought they were suppose too. I'll investigate further into University Hospitals and pass on the information. Thank you.

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