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Monday, February 11, 2013

Support: We Need it, and We Need to Give It, too: Team Issy

It's something brushed over, forgotten, hidden, tucked away: when our children are violent, are aggressive, and we need help to get them help.

Not all of us in the community will be able to personally relate, and that's okay--what's important is that we recognize and support everyone.

Some children (and adults) with autism will be physically aggressive, will need a greater degree of support to manage these outbursts, to find ways to communicate their needs in a way that doesn't hurt themselves or others.

Insurance companies don't like to pay for long-term treatment, and good treatment centers, well--there aren't enough of them, and they're expensive. And the government, through medicaid, rarely wants to pay for the length of treatment needed or period.

It isn't right. It isn't fair. And it adds a stressor to families already teetering on the edge. And this isn't about bad parenting, nor a lack of love and care for the autistic child. These parents who have children with aggression issues often love their kids deeply, are doing everything they can to help them, and they keep coming up against brick walls and no answers.

To compound it, to make it all so much worse, is that when the families do reach out to the community, they are often left with vitriolic, judgmental comments and a holier-than-thou attitude by people certain they could keep it from happening.

Listen, some things you just have to live through to know. We've been blessed that aggression was something we only dealt with for a few years, before Bobby's stroke rewired his brain so that the aggression stopped cold. Before that, I was his punching bag, his jungle gym. When he was three, four, five, that wasn't a problem. When he was nine and 100 pounds thanks to risperadol, getting climbed on, smacked, head butted, well, hey, that shit hurt.

We got lucky. I know that. Bobby knows that. He found other ways to channel his frustration. He got better at communicating. After his stroke, all the meds he was on were stopped, and we brought him home to home school him. Huh, was it the stroke, or everything else after that stopped the aggressive behavior? I'll never know for sure, and that lack of certainty is a good thing.

It means I can relate, that I can stop and consider whether I have any answers to give with absolute conviction to this mom, Kelli, as she battles to raise enough money to keep her daughter in treatment

I don't. I can't even promise with conviction that everything will work out, that things will get better. I can't and won't use platitudes, either.

What I can do is this: share her story and her family's obvious deep love for their daughter Issy and their desire to help her. I can support the family, refuse to shower judgment and disdain on a family that is struggling, hurting. 

Issy has a glorious smile. I can't help but notice how glorious all our children's smiles are, how genuine and real they are. Bobby, my sweetheart of a son, refuses or can't fake smile--so we don't do those family portraits at Sears because who wants to go through that when I can wait at home and capture his joy?

I know, that digresses. But, those smiles, the genuine joy and delight that lights up Issy's face? You need to see that. To know she is a real young woman who needs help so she can live a happy, successful life, so that she and her family can get the tools they need to help her do that.

Team Issy. I'm on it. Are you?

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6 comments:

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Engr Eric Davis said...

Hello to the word, I'm Engr Eric David, I have confirmed and till now I'll still anouced to the public and the people around me that the best way to get rid of this health challenges is to contact the relaible Herbalist for herbal cures.
I read deaply to have believe and try to made used of the medicine. When I was diagnosed on 10/10/2015, it was only the English prescribed I made use of all through, it was a very big stress for me, I had a friend who introduced me to to the great Herbalist of African, Dr. Odey Abang he's very popular now in my State, Anchorage, Alaska where I lives. I contacted him as my friend directed me to him for a help. Glory to God, my case is settle among many others are My two Cousins, James and John with wife's he cures from HIV/ AIDS, And till now, none of this had been confirmed in us, feel so blessed and happy to be back again as I was being born. I have been diagnosed severally and still shows nothing in us, Dr. Odey Abang is a God's sent Herbalist
You can reach as well as inform your loves ones to get ride of this deathly viruses.
You can reach him in either way
Email-
odeyabangherbalhome@gmail.com
God bless

Thomas Vivian said...

Always, anywhere and anytime,I feel very comfortable now all to the work of Dr Odey Abang,the Herbalist who prepare for me the remedies to my health challenges.
I could feel more comfortable when he explained to me how dangerous it's caring Herpes with me getting affected easily with Other sexually transmitted infections. Genital sores increases my risk of transmitting or contracting other sexually transmitted infections, including AIDS.
Newborn infection. ...
Bladder problems. ...
Meningitis. ...
Rectal inflammation (proctitis).
I was so scared when he says that because I found a lover who ran into it and had a shock on me after the checkup and develop stroke.
This has been my earnest prayers for the physician therapist to come in with positive solutions to remedies Herpes and most viral infections. I'm now free and I thank God for leading me to see others getting cured with Herbs. I decided to try and found out that the best way I would have done was to get rid of it and give my testimony. Glory to God I became free after I received his medicine from the DHL and applied as instructed. Till date I had no SYMPTOMS nor virus to detect of me, I called him and thankful for what he did,and ask if he could cure my stroke boyfriend,he said yes and did the same preparation to my boyfriend for his stroke and Recoverd from it. Nothing is impossible with Herbs IN CURES, you're the next if you will be willing to apply his medicine and instructions on how to manage.
Sickness has no right to dwell on us,you can reach him at his email address
For your immediate response to health

odeyabangherbalhome@gmail.com

Sierra Nibbe said...

I TESTED POSITIVE TO HIV SINCE 2018

I was told by my doctor that there's no possible cure for it but it can be suppressed with the use of medication!! I felt depressed & sad. I started taking my medication. I felt frustrated, so I tried to seek help online when I came across this website (https://chiefdrluckyherbaltherapy.wordpress.com/) of a doctor called Chief Dr Lucky.  Also I saw a lot of testimonials about him on how he uses natural herbal medicine to cure HIV AIDS and numerous Infections & different kinds of disease as well. So I contacted him and told him my problems after a brief consultation with him. He Prepared and  sent me the herbal medicine and I took it as he instructed me, Then he called me 3weeks after to go and have a check-up!! It brought out testing negative, I felt calm a bit, and the doctors day for more clarity I will have to come back after 1week of which I did and tested negative for the second time !! I am so wow and grateful to this doctor whose medicine has NO SIDE EFFECT, there's no special diet when taking the medicine. He also have cure for 
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You can contact him via Email: chiefdrlucky@gmail.com or whatsapp +2348132777335

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