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Saturday, August 21, 2010

Pompe disease and the Power of One Family

I'm sure many readers have already seen Extraordinary Measures, the story of John Crowley's herculean effort to find a treatment for his children's Pompe disease. John also has a website. If you haven't had a chance to watch this film yet, listen to the Crowley's talk about their children and their tireless effort to save them at the movie's website.

Far too often in our autism community, there is a narrow focus on autism and how it affects us; we forget that there are so many diseases out there impacting other families, often far more profoundly.

We should strive to be not just an autism community but a disability community, focusing on building support for all families dealing with disabilities and diseases, and to remember that we are not alone.

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